How to exit the Biobank
Giving your consent and acceptance to the Biobank is voluntary and is in force indefinitely. If you wish, you can withdraw your consent or object to the use of your samples and data in the future.
If you wish, you can exit the Biobank either by withdrawing your consent before your sample has been handed over to the Biobank, or later by objecting to the processing of your samples and data.
You can withdraw your consent before giving the sample or at the latest before the sample and the related data are handed over to the Biobank. After this, a withdrawal will be processed as an objection to the use of your data in accordance with the European General Data Protection Regulation. Withdrawing your consent is always considered to also include objecting to the use of data, i.e., using the right to object.
Your request to withdraw your consent and/or object to the use of your data must be presented in writing with the Biobank Refusal Form by either sending it directly to the Blood Service Biobank or giving it to the blood donation staff.
What happens if I want to exit the Biobank?
Exiting the Biobank, i.e., withdrawing your consent and/or objecting to the use of your data will become valid once the Blood Service Biobank has received the completed Biobank Refusal Form.
If you choose to withdraw your consent, Biobank samples will not be taken and all your data (excluding the information about your consent withdrawal) will be deleted from the Biobank register. If your samples and data have already been handed over to the Biobank, all your samples and data (excluding the information about your use of the right to object) will be destroyed once you have exercised your right to object. In both cases, you will receive confirmation by post that your data has been deleted from the register.
Withdrawing your consent and/or exercising your right to object applies only to the Blood Service Biobank. Exercising your right to object applies to all your samples and data stored in the Biobank. Withdrawing your consent and/or exercising your right to object does not affect your status as a blood donor in any way.
After receiving notice that you wish to exercise your right to object (Biobank Refusal Form), the Biobank is no longer permitted to use or pass on your samples and the related data to new research projects. The Biobank is prohibited from processing your personal information once you have exercised your right to object. All research projects to which your samples or data have been given will be informed that you have exercised your right to object.
Requesting information after exiting the Biobank
Please note that after exercising your right to object you will no longer be able to obtain information from the Biobank because no information will be stored. This means, for example, that you won’t be able to ask about studies in which your samples and data have been used or obtain any research results.
If you want to make a request for information, you must do so before exercising your right to object.